WWRP Logo making every experience count

1.

What is the Wounded Warrior Recovery Project (WWRP)?

The Wounded Warrior Recovery Project (WWRP) is a long-term research study being conducted by the Naval Health Research Center (NHRC). Funding support comes from the Navy Bureau of Medicine and Surgery (BUMED) under the Wounded, Ill, and Injured (WII) program, as well as the DoD/VA Center of Excellence for Extremity Trauma and Amputation (EACE). The goal of the project is to gather facts about the long-term effects of injury on the quality of life of U.S. military personnel. For more information, please visit the About Us page.

2.

Why was I selected to participate?

Participants are invited to participate based on their experience. Participants have been selected because they visited a Medical Treatment Facility during their deployment. The information that they share about recovery will be used to minimize the impact that injury has on the men and women of the U.S. armed forces. For more information, please see the Participants page.

3.

Does the WWRP accept volunteers?

Yes.  Current or former service members that would like to participate and have not yet been invited may submit their information to determine if they are eligible.  For more information, please visit the Volunteers page.

4.

What is being asked of me as a participant?

Participants answer questions about their health and quality of life experiences once every 6 months. The surveys are usually completed online, but can be done over the phone or via mail. Each survey takes only about 20-30 minutes to complete. The survey contains questions concerning the injury itself, factors regarding the injury, and basic health and quality of life assessments. These responses provide powerful insights into the recovery process from different types of injury. Gift cards are given as thanks for participation, but participants may find that the contribution of their experiences to improvements in the health and well-being of fellow service members is the real reward. For more information, please visit the Participants page.

5.

Why is WWRP not on a ".mil" domain?

The Wounded Warrior Recovery Project (WWRP) website uses a ".org" domain name for a variety of technical reasons, but the most important one is that the study is open to both active duty and separated service members. This means that it needs to be accessible to participants that are retired or otherwise separated from the military and can no longer access a ".mil" site.

However, as a Naval Health Research Center (NHRC)-sponsored study site, the WWRP study site is maintained by the Department of Defense (DoD) and is subject to the same or a similar level of oversight as other DoD sites that reside on a ".mil" domain. All security and confidentiality protections for the WWRP website meet or exceed DoD standards for sites with a ".mil" domain. (Note that the WWRP website's prefix reads "https," indicating a secure website.)

6.

What if I miss a survey?

If you miss a survey, your input is still very valuable to the study. If you are unable to complete a survey within a month of your scheduled time, please wait until your next scheduled survey. Survey reminders will be emailed or mailed every 6 months after enrollment.

7.

How long does the study go for?

The Wounded Warrior Recovery Project is currently following participants for 15 years. It is important to follow our participants for as long as possible to help understand the recovery process in more depth.

8.

How do I participate?

Participants are invited to participate based on their experience. The information that they share about recovery will be used to minimize the impact that injury has on the men and women of the U.S. armed forces. For more information, please visit the Participants page.

9.

Do I have to answer all of the questions?

No. You may decline to answer any question that you would prefer not to answer. Each question on the quality of life surveys has a "prefer not to answer" option. You may withdraw from the Wounded Warrior Recovery Project at any time and for any reason, without any form of penalty to you whatsoever. Remember, participation is completely voluntary.

10.

Who is conducting the study?

The Wounded Warrior Recovery Project (WWRP) is a long-term research study being conducted by the Naval Health Research Center (NHRC). Funding support comes from the Navy Bureau of Medicine and Surgery (BUMED) under the Wounded, Ill, and Injured (WII) program, as well as the DoD/VA Center of Excellence for Extremity Trauma and Amputation (EACE). The goal of the project is to gather facts about the long-term effects of injury on the quality of life of U.S. military personnel.  For more information, please see the About Us page.

11.

What are the benefits of the study?

The knowledge gained from  the WWRP will help to better understand the long-term effects of injuries and identify more effective strategies to help wounded warriors recover.

12.

What are the risks to participating in this study?

We take the safety and security of participants and their information very seriously. This study has been classified as "minimal risk" by the Institutional Review Board charged with the Protection of Human Subjects in Research. The principal risk is inadvertent disclosure of personal data.

Considerable data-protection safeguards are in place to minimize any compromise of your data.  All data is stored on secure servers in a secure facility, and any data transferred is encrypted according to Department of Defense (DoD) regulations and in line with industry standards. All security procedures meet or exceed DoD standards for the handling and storage of protected health information. The only personnel that have access to this data are a limited group of researchers at the Naval Health Research Center (NHRC). This data will not be shared with supervisors, authorities, or medical systems. Identification numbers are used instead of names. Each person that has any access to protected health information has been specially trained in the management of protected health information and has signed documents which commit them to the protection of protected health information.

Additionally, there is a possibility that the questions asked may provoke an unpleasant reaction or recall unwelcome memories. In the event that such a reaction occurs, the Defense Center of Excellence for Psychological Health and Traumatic Brain Injury stands by with its free services that can be accessed 24 hours a day, 7 days a week at +1-866-966-1020 (or via email at resources@dcoeoutreach.org). In addition, they can be reached online at www.dcoe.health.mil/24-7help.aspx for more information or for live chat. If you have an unpleasant reaction, be sure to also report this to the study investigator, Mr. Michael Galarneau, at michael.r.galarneau.civ@mail.mil and the Institutional Review Board at USN.NHRC.IRB@mail.mil.

13.

How safe is my information?

We take the safety and security of our participants and their information very seriously. This study has been classified as "minimal risk" by the Institutional Review Board (IRB) charged with the Protection of Human Subjects in Research. This means that there is some small risk that some of the personal information of our participants, including answers to survey questions or email addresses, could be compromised.

Considerable data-protection safeguards are in place to minimize any compromise of participant data.  All data is stored on secure servers in a secure facility, and any data transferred is encrypted according to Department of Defense (DoD) regulations and in line with industry standards. All security procedures meet or exceed DoD standards for the handling and storage of protected health information. The only personnel that have access to this data are a limited group of authorized researchers. This data will not be shared with supervisors, authorities, or medical systems. Identification numbers are used instead of names. Each person that has any access to protected health information has been specially trained in the management of protected health information and has signed documents which commit them to protecting protected health information.

To further help us protect participant privacy, we have obtained a Certificate of Confidentiality from the U.S. Department of Health and Human Services (DHHS). With this certificate, we cannot be forced to disclose information that may identify participants in any federal, state, local, civil, criminal, legislative, administrative, or other proceeding. We will use the certificate to resist any demands for information that would identify a participant, except to prevent serious harm to the participant or others. A Certificate of Confidentiality does not prevent a participant from voluntarily releasing information about themselves or their involvement in the study. A Certificate of Confidentiality does not represent and endorsement of the study by the DHHS or the National Institutes of Health.

14.

Will my answers be shared with anyone else? Who will have access to my information?

The answers to these questions will never be shared with anyone other than Wounded Warrior Recovery Project authorized researchers.  Identification numbers are used instead of names, and data will not be shared with supervisors, authorities, or medical systems. The answers to these questions are considered protected health information and are protected by Federal Law, including the Health Insurance Portability and Accountability Act, or HIPAA. Also in line with Federal Law, no personally identifiable information can ever be disclosed to any third party. Any study results will be reported only in the aggregate (i.e., in large groups) and will show only "deidentified" data (all names and other personally identifiable information removed) to protect the identities of participants. For more information on our privacy policy, please click here

To further help us protect participant privacy, we have obtained a Certificate of Confidentiality from the U.S. Department of Health and Human Services (DHHS). With this certificate, we cannot be forced to disclose information that may identify participants in any federal, state, local, civil, criminal, legislative, administrative, or other proceeding. We will use the certificate to resist any demands for information that would identify a participant, except to prevent serious harm to the participant or others. A Certificate of Confidentiality does not prevent a participant from voluntarily releasing information about themselves or their involvement in the study. A Certificate of Confidentiality does not represent an endorsement of the study by the DHHS or the National Institutes of Health.

15.

How can I contact the study?

Please e-mail us at wwrp@mail.mil.
We can be reached toll-free via telephone at: +1-855-557-6480.

For more information, please see the Contact Us page.

16.

How can I opt out of further contact?

To opt out of the study or any further contact, please send an email with your study number to declinewwrp@mail.mil.